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Cancer patients guaranteed oncofertility treatment coverage under new Illinois law

Governor signs bill requiring insurance coverage of sperm and egg preservation for cancer patients

Illinois cancer patients no longer have to choose between costly life-saving treatments and preserving their ability to one day have their own biological children, thanks to a fertility preservation bill signed  Aug. 27 by Gov. Bruce Rauner at Northwestern Medicine Prentice Women’s Hospital.

HB 02617, based in part on research and advocacy at Northwestern University, amends the Illinois insurance code to require oncofertility coverage.

“This is not just a signature on a bill; this is a signature event,” said Teresa K. Woodruff, director of the Oncofertility Consortium at Northwestern University.

The interdisciplinary team of biomedical and social scientist experts from across the country was one of many healthcare providers that supported the legislation.

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This is a legacy moment when research, medicine and legislative decisions meet the needs of patients, families, citizens and Illinoisans.”

Teresa K. Woodruff
Director, Oncofertility Consortium

“This is a legacy moment when research, medicine and legislative decisions meet the needs of patients, families, citizens and Illinoisans,” Woodruff said.

The bill makes Illinois the fifth state to enact a law requiring insurance coverage for fertility preservation. 

“Today we take a major step forward in protecting the fertility and the reproductive health of men and women who are challenged by cancer and cancer treatment,” Rauner said. “We want to make sure that every person who wants to be a parent at some point in their life has that opportunity. And today, we make Illinois a national leader in making sure that that’s the opportunity.”

“This bill allows patients to make a decision based on medical need, not based on their bank account,” said Kristin N. Smith, program manager for Fertility Preservation at Northwestern Medicine Fertility and Reproductive Medicine. “Northwestern Medicine’s Fertility and Reproduction team, along with the interdisciplinary teams from the Robert H. Lurie Comprehensive Cancer Center of Northwestern University and the Oncofertility Consortium here at Northwestern have been instrumental in leading fertility preservation from the scientific bench to the patient bedside.”

In her role at Northwestern Medicine Fertility and Reproductive Medicine, which is the hub for the Oncofertility Consortium at Northwestern, Smith consults with all young, newly diagnosed oncology patients at Northwestern’s Lurie Cancer Center to help each patient understand the fertility risk associated with treatment as well as options for fertility preservation.

Among her patients was Megan Connolly, who spoke about her experience with oncofertility at the bill signing.

“Being diagnosed with a life-threatening illness like cancer at such a young age is absolutely devastating. But to also have to accept that your life-saving treatment may also leave you infertile and unable to have the option to have a biological child is overwhelmingly heartbreaking,” Connolly said. “At a time when patients should be focusing on getting better, one thing they should not have to worry about is coming up with the financial means to pay for fertility preservation.”

rauner640Illinois is the fifth state to require coverage for fertility preservation.

After consulting with Smith, Connolly made the decision to pursue egg harvesting prior to beginning cancer treatments. Smith helped Connolly secure funds to cover the medical costs associated with fertility preservation, which she could not have afforded otherwise.

“This bill will give young patients excitement for their future, knowing that because insurance was able to cover the cost of fertility preservation, their dreams of one day having a family of their own will not be taken away by cancer,” Connolly said. “I am thrilled that patients now will not have to worry about the financial burden of fertility preservation and can look forward to hopes and dreams just like mine.”

“As you know, cancer has no economic boundaries, no socioeconomic boundaries – racial, ethnic, everything. It crosses all walks of life,” said State Rep. Laura Murphy, who sponsored the bill. “This bill is going to help more people seek the care that they need.”

Woodruff, who also is dean of the Graduate School at Northwestern and Watkins Professor of Obstetrics and Gynecology at Feinberg School of Medicine, coined the term “oncofertility” in 2006 to describe the merging of two fields: oncology and fertility. Northwestern Medicine physician scientists pioneered many of the techniques for fertility preservation and are internationally recognized specialists.

“Today, the State of Illinois recognized that preserving fertility in the cancer setting is a medical need and that insurance should be provided to ensure young adults don’t have to choose between life preserving treatments and fertility interventions,” Woodruff said.

“This is a win for science and more importantly, this is a win for families. This legislation will help young people and families make crucial decisions and afford the treatments,” she wrote in remarks before the bill signing.